Close to half the people living with neurofibromatosis type 1 (NF1) , a genetic condition that affects the skin, nerves, and other parts of the body, also have plexiform neurofibroma. These tumors grow along nerves and can cause pain, disfigurement, and trouble with everyday functions, and they can even be life-threatening when they press on vital organs. The tumors are often woven into surrounding tissue, and surgery often can’t remove them completely.e60dc2a1-f33c-4a05-9b50-8e3e8e597629cbda9f26-d3c4-4996-ae1b-ab9ba4cfc058 Until recently, there were no medications to treat these inoperable tumors, but now there are two oral medications…
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