If you’re a parent with HAE, it’s important to take care of yourself and keep your stress levels at bay. Eating healthy foods, exercising daily, and getting enough sleep are vital for your well-being.
If your child also has HAE, you can help him or her learn to recognize symptoms and take medications regularly. It’s also a good idea to create an individualized treatment plan with your son or daughter’s doctor.
Anyone who cares for your child should know your emergency plan, in case your child experiences an HAE attack. You can prepare a concise document that explains this strategy.
Kids with HAE often benefit from having an advocate. Be sure to learn as much as you can about HAE and your child’s options. And educate teachers, coaches, and friends about the disease.
Most importantly, try to maintain a positive attitude when discussing your child’s disease. Be optimistic, and encourage them to live a full, active life.
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