Living with hereditary angioedema (HAE) means navigating a rare condition that causes painful swelling in various parts of the body, often including the face, hands, feet, genitals, abdomen, and airways. Attacks can be unpredictable and sometimes serious, making day-to-day life feel uncertain and stressful.
Because HAE affects everyone differently — how often attacks occur, how severe they are, and how they disrupt daily routines — managing it requires a personalized plan.
An immunologist or allergist is typically the “point person” who takes the lead role in diagnosing and treating HAE, but often, other specialists and healthcare professionals are involved in treating some of the symptoms, coexisting conditions, or other medical needs throughout your life.
Together, your HAE care team will work to help you stay prepared, protected, and in control. Here’s a who’s who of key members of your healthcare team and how each one helps support your health and quality of life.
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