Educating yourself and connecting with others who are going through similar experiences can help you prepare for the road ahead and feel less alone along the way. Various organizations and advocacy groups have expertise in colon cancer. Here are some of our favorite resources.
1. Colorectal Cancer Alliance
It offers many educational resources to help you advocate for your health:
It supports colon cancer research and participates in AllyCon, an event where patients, caregivers, and advocates attend information sessions and make powerful connections that will help them along a colon cancer journey.
The Colorectal Cancer Alliance also provides access to BlueHQ, an online hub that can connect you with patient navigators and other people with the disease. You can enroll for free online or call the toll-free helpline at 877-422-2030 for more information.
Stay connected with the Colorectal Cancer Alliance through its social media channels:
2. Colon Cancer Coalition
The Colon Cancer Coalition hosts events, such as the Get Your Rear in Gear 5K Run/Walk and the Tour de Tush Bike Ride, to raise funds locally that are then given back directly to these communities to promote access to screenings. It also provides community grants and funding to support these efforts.
The Colon Cancer Coalition offers educational materials about colon cancer on its website and blog. And it is home to Faces of Blue, a series featuring people impacted by colorectal cancer — patients, survivors, and their loved ones — who share their stories to bring people together and encourage the colon cancer community.
You can reach the Colon Cancer Coalition by calling 952-378-1237 or connecting on social media:
3. Colon Cancer Foundation
Research is its main focus. The Colon Cancer Foundation promotes fundraising campaigns, with the proceeds used to grant awards to investigators and research societies to help advance our understanding of colon cancer.
Its website offers educational materials about colorectal cancer and survivorship, including information for younger patients. It also provides advice for people seeking financial aid, transportation assistance, and information on Social Security Disability Insurance benefits.
You can keep in touch with the Colon Cancer Coalition by emailing [email protected] or connecting with it on social media:
4. Fight Colorectal Cancer
It offers these resources for patients and their loved ones:
The foundation hosts Colon Club, an online community that unites patients, caregivers, and families. There is a dedicated app for this community, too.
Fight Colorectal Cancer supports research and advocacy efforts for the colon cancer community. The annual fundraising hike Climb for a Cure donates proceeds to colon cancer research.
You can connect with Fight Colorectal Cancer by calling 703-548-1225 or emailing [email protected]. You can also follow it on social media:
5. Colontown
If you’re considering joining a Facebook group focused on colorectal cancer, look no further than Colontown. This free online resource can connect you with over 100 private Facebook groups based on your situation and circumstances. Each group is led by someone who has had colon cancer themselves and understands the unique challenges it may bring.
You can email Colontown at [email protected] or reach out through social media:
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