Take Care of Your Mental Health When Living With CIDP

Staff
By Staff
2 Min Read

If you are dealing with the emotional toll of slowly losing your independence, Berko says that the first step is to just sit with these feelings.

“Maybe that means getting in touch with your anger or getting in touch with your sadness — how devastating or disappointing it is to have limitations,” says Berko. Consider how you want to work through these feelings; maybe it’s talking to a loved one or a mental health professional, or journaling about your feelings (you can even use a voice recording app if writing or typing is too difficult).

In addition to working through these feelings, you can take steps to preserve as much independence as possible through physical and occupational therapy and assistive devices. Physical therapy can help you improve and maintain mobility, and devices like shower and tub grab bars, angled and long-handled utensils, and clothing with large zippers or magnetic buttons can help with daily tasks like bathing, eating, and getting dressed. It’s normal to feel uncertain about these accommodations due to feelings of shame or self-judgment; at the same time, they can provide greater freedom and self-reliance.

Berko also recommends figuring out a way to become helpful to others despite your new limitations. “It can feel really good to help someone else, whether that’s volunteering or getting a pet that you can take care of,” says Berko.

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