Ideally, Huntington’s disease has already been part of age-appropriate family conversations before adolescence. “When families normalize these conversations at an early age, it prevents the ‘big’ talk later on,” Krueger says. If that hasn’t happened in your family, you can still start with what your teen needs to know now rather than trying to cover everything at once.
Before the conversation, Hanson recommends working through your own feelings about Huntington’s with a therapist, support group, or trusted friend. “We want to avoid adding our own fears and anxieties to the teens’ in this process,” she says.
It also helps to know the basics of…
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