How Independence May Evolve and Affect Emotions
As independence evolves over time, a range of emotions can surface. The best way to get through these moments is with “ongoing support for individuals living with dementia and their care partners, as anticipatory grief can be devastating for those going through it and may even keep them from moving forward,” says Serpico. “Providing support and understanding through the different stages of the disease is necessary for both the individual and the care partner to continue to address concerns and appreciate the wins.”
One of the most effective ways to cope with the emotional side of evolving independence is to build a reliable support network. Sharing your diagnosis with trusted friends and neighbors can help you create that network. Vidic recommends looking into local support services that offer education, group meetings, and adult day programs. Community-based resources can also assist with transportation, meals, and in-home help, such as a companion, cleaner, or home health aide.
Additional support is available through organizations such as the Alzheimer’s Foundation of America (AFA). “The AFA Helpline is available seven days a week and staffed entirely by licensed social workers specifically trained in dementia care,” says Serpico. “They can provide answers to questions, emotional support, and connections to additional services and resources.” You can reach the AFA Helpline by:
Fear is a natural response to an Alzheimer’s diagnosis, but staying engaged in daily life is the foundation of a positive path forward. “Certain tasks may eventually need to be given up for safety reasons, such as driving, while others — like managing finances — may be necessary to protect the person,” says Serpico.
While there’s no one-size-fits-all approach when it comes to these conversations, Serpico and Vidic agree that it’s beneficial to have them early to make transitions smoother and less stressful for you and your loved ones.
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