Tips for Spreading the News
Before sharing the diagnosis, it helps to decide ahead of time what you’re willing to share and with whom you want to share it. “No one is entitled to this very private information,” says Dr. Black. Disclosing it is a personal choice.
Sharing the diagnosis with your nearest and dearest, though, can provide the emotional and practical support you need now and in the future.
Here are ways you might approach the news with different groups of people.
Close Loved Ones
You may want to be open and share the mild cognitive impairment diagnosis with your immediate circle to help them understand the day-to-day challenges you may face, while affirming your independence. “There’s a lot of life left to be lived with MCI, and that type of disclosure to your immediate circle can be incredibly helpful when you then solicit support,” says Black.
Find a quiet time to talk, without delaying the conversation too long. He suggests sharing actionable examples of how loved ones can help, such as, “If I seem to be isolating or staying inside more or saying no to more activities, will you give me that extra nudge to help me get out there? I really want to fight against the tendency that I’m feeling to withdraw.”
Extended Family and Friends
For your wider circle, Black suggests deciding what to say on a case-by-case basis, depending on how much you trust them, their intentions, and their ability to keep the information private. “I recommend a little bit more of a vague statement,” he says.
For example, if an acquaintance expresses concern, you might reply, “Thank you so much for checking in. I’m seeing a great team of doctors and have a solid plan for moving forward. I’ll let you know if I need any extra help.” This allows you to acknowledge their concern without disclosing details around the diagnosis.
The Larger Public
You likely don’t need to share anything about the diagnosis beyond your trusted circle. In any case, “Disclosure should be dictated by the person with MCI and not by their family,” says Black. Have an open discussion with your loved ones about who to tell, how much to share, and when to share, to make sure everyone is on the same page.
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